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Breast Cancer

Good Hair Day

Thursday, December 7, 2006

I’ve been telling Donna she looks great with the hair she has for a couple weeks now. The last time we went in for haircuts, when the stylist was evening her hair out, she told her that she looked great and should go for it. But her hair was still shorter than it was when we cut it all off back in May and she wasn’t feeling comfortable with it yet. I thought for sure she was going to keep it covered up until it was as long as before, which would be still another couple months, but today, out of the blue, Donna decided to go sans bandanna/scarf/headdress.

She got one or two double takes, a lot of compliments and even a couple hugs. But mostly she got a lot of people wanting to feel her hair. It is different than before that’s for sure, it is softer, a little darker, a lot more gray and way more curly. People say the tight curls are temporary and eventually your hair returns to its pre-chemo shape, I’ll let you know…

Started up, still up.
Miata Top Transitions since 01/01/06: 499
Tagged: Breast Cancer

Weekend Update

Sunday, September 10, 2006

First the good news: We are finished with Phase Three of Donna’s breast cancer treatment, Friday was #33 and her final radiation treatment. Lumpectomy, chemo and radiation are done. Now we are on to the preventative process. Because her cancer was ER+ she will be taking a drug called tamoxifen for 5 years to help prevent any recurrence.

Now to the mediocre news: We only made it through 18 of 24 episodes of TDTVS, AKA Lost: Season 2. Some of the situations and happenings are just too weird. But mostly what keeps us coming back is the humor, especially Sawyer’s irreverent and on target nicknames for the rest of the survivors. It seems as if some of the back-story we are getting is mostly rehashing of last years back-story with a touch of new stuff added to make the character’s stories meld together with strange coincidences, how their lives interacted in the past without them knowing about it.

Then the bad news: Two help desk tickets, two separate emails and even two phone calls have gotten me anywhere with my current web host, ssWebHost, so I’ll be moving to the .net address soon. The first ticket actually prompted a dialog. They said that I should let them know and they’d send me a link to where I could set up my new credit card. I responded that they should send it to me. 4 days later I still hadn’t heard back so I tacked on another message to the ticket asking again. After a week of no replies, I opened a separate ticket asking for way to change my billing info. I figured the new one would pop up on their radar. Nope.

I emailed the billing department of the web host. Silence. OK, let’s try emailing their support address. All I heard back was the white noise of packets zipping by my node.

Hidden in a dark corner of ssWebHost’s web page was a contact phone number, Friday I gave them a call. After an unusually long time the phone started to ring with a very strange sound. I knew I wasn’t calling Kansas. After about 7 rings an automated voice mail system kicked in. It was not English, could have been Russian or some other middle European language. Having dealt with enough of these type things I figured if I hit the #2 on the phone I might get another language and if I was lucky it might be English. Nope. Maybe I misdialed. The second time I had the same pause as before, but this time instead of the funny ring I was disconnected.

Started down, went up, back down, still down.
Miata Top Transitions since 01/01/06: 378
Tagged: Breast Cancer, Rants, TDTVS

Welcome Mr. Bond

Friday, August 25, 2006

Cancer Death RayYou will be strapped to a table and your cancer cells will meet their doom from blasts of my special death ray.

Because Donna’s skin was getting very red and sunburned looking, with even a couple of small blisters forming, her doctor decided to give her a slight break from the total breast irradiation. So, since Wednesday, they have been doing some of the seven scheduled “direct on the spot where the tumor used to be” treatments. For these treatments, instead of just the regular output they add some extensions with metal plates that act as lens to focus the beam on just one spot.

I went along with Donna for her radiation treatment again today and I watched them do the setup. I only took the one photo of the radiation machine, I’d have liked to taken one or two with Donna laying there all ready to go, but because of the nudity the MPAA would slap me with an R-Rating. 🙂

Started up, went down, back up, still up.
Miata Top Transitions since 01/01/06: 347
Tagged: Breast Cancer

Halfway Home

Wednesday, August 16, 2006

Donna DrivesDonna is getting 33 radiations treatments for the breast cancer, so every weekday she works 5-1/2 hours then drives herself to the Cancer Center, gets zapped, drives back to work where I hop in the car and drive her home. I go back to work and finish out my 8 hour day. This is her coming back to pick me up this afternoon, today, Wednesday and it is “Hump Day” in more ways than one. Not only are we half way through the work week, but today was Donna’s 17th radiation treatment putting her at halfway through.

So far she is tolerating the treatments pretty well. She has been complaining of still feeling nauseous and the radiation guy has told her repeatedly that it can’t be the radiation because she isn’t getting any that goes anywhere near her stomach or esophagus. He and the oncology doc are thinking it might be gall bladder. Today when she went in she questioned the radiology techs that if no radiation is going anywhere near her esophagus why was the skin in the upper center of her chest turning reddish brown and why was she getting a mild sore throat. One of the techs took out a marker and drew a green box on her chest to show where the radiation was hitting. Well that box surrounds the area where your esophagus is. Now tomorrow when she goes in for her treatment she’ll ask to see the doctor and play show and tell.

Started up, went down, went up, back down, still down.
Miata Top Transitions since 01/01/06: 332
Tagged: Breast Cancer

Radiation Treatment #4

Thursday, July 27, 2006

Today I got to see first hand what those four little cross-hairs that are stuck on Donna’s chest are for. She asked the techs yesterday if it was OK to bring me in and watch a treatment so I would know what was happening and they said OK. Plus then I could describe the process to her, because she has to remove her glasses and then can’t really tell what is going on.

Upon arrival she goes into a changing room to swap her upper clothes for a hospital gown. After a short wait Donna gets called back into the treatment room where she lays on the a table that has her personalized molded foam pad on it. The pads are blue and everyone’s is hanging on a rack on the left side of the room like so many overcoats in a hat check room. The pad is probably the same technology as used in the custom seats F1 drivers use. At work we use something similar for packing things for shipping, a reaction between two chemicals in a bag makes a foam that expands to fit tightly around an object.

Once she is situated, they raise the table to shoulder height and move it into the center of the room. Here is where another familiar technology is used in a different manner. On two walls of the room are something resembling those fancy laser levels from Home Depot. Four bright green lines cross in the middle of the room and then Donna is inched and nudged so that these lines cross exactly through the cross-hair stickers on Donna’s torso. She is told to hold still and the tech leaves the room closing the one foot thick bank vault looking door behind her.

Outside two technicians sit watching two video monitors on their left showing the interior of the treatment room. On the right of their station are a couple of computer monitors that show what looks like a mainframe style terminal program (maybe DOS, but thankfully not Microsoft Windows) that controls the “ray gun.” I don’t know what else to call it, but it is nothing like you might imagine a ray gun in a James Bond or Flash Gordon movie to be. It is more like a giant doughnut cut in half or a big “C” surrounding the front of the table. One side has a little window in it where the focused radiation beam will exit. A simple mouse click and the treatment begins. The C-shape rotates a little, to get to the proper angle, so it is just hitting the breast and not any internal part of the body. Little numbers jump around on the monitors and 48 secs later it stops. Mouse click 2 sends the ray gun rotating 190 degrees on it’s axis, so the window is on the other side of Donna’s body aiming up and once again skimming the body and just blasting breast tissue. We countdown 48 more seconds, done.

The tech then opens the vault and calls in that they’re done. The table is retracted and lowered so Donna can hop off. Back to the dressing room to discard the gown and get redressed. The whole thing takes less than 15 minutes. Bye, see you tomorrow.

Only 29 more to go.

Tagged: Breast Cancer

Ripple Effect

Monday, July 17, 2006

Every year ASCO has one of Augusta hospitals bring over their mobile mammogram unit. It isn’t free, but the company provides a $200 wellness benefit to offset most or all the cost of the test. Donna always goes to her doctor, but you can see where it might be popular for the hourly employees, they can get that little bit of diagnostics taken care of on company time, they don’t have to take vacation or an attendance point. Each year they get an average of 35 women to sign up.

This year, with Donna’s diagnosis, her openness to talk about her disease and vocal urging to people to get a mammogram, they have 74 sign-ups.

Started up, went down, back up, still up.
Miata Top Transitions since 01/01/06: 271
Tagged: Breast Cancer

Looking Shaggy

Saturday, July 8, 2006

As far back as I can remember Donna and I have been getting our hair cut every 4 weeks. At the last one each year we sit down with the stylist’s appointment book and mapped out our haircut schedule for the coming year.

The other day I asked Donna was it time for our haircut soon as I thought that mine was getting a little shaggy. She looked in her little calendar and said, “Nope, we aren’t due until July 25th.” “Wow, that is nearly three weeks way,” I said, “my hair is getting long enough that I might have to start carrying that comb again.” That’s when she looked backwards and realized we were supposed to go on June 27th. We had missed an appointment. That was 4 days after chemo #4, so she wasn’t exactly paying attention to those mundane details. Besides, it is not like she noticed needing a haircut, she balder than a new born.

Although, Donna’s head has been itching something fierce and we could swear that some places that were smooth a week ago, so maybe the hair is starting to make a comeback.

Tagged: Breast Cancer
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sturgeon’s law

"Ninety Percent Of Everything Is Crap"
Derived from a quote by science fiction author Theodore Sturgeon, who once said, "Sure, 90% of science fiction is crud. That's because 90% of everything is crud." Oddly, when Sturgeon's Law is cited, the final word is almost invariably changed to 'crap'.

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